Thanks Uncle Steve for letting me know about this article. It is crazy that since I have been diagnosed, I have actually read two articles in the news about girls with POTS. This is encouraging to me because hopefully the more POTS is out there in the media, the more (hopefully) will be learned about POTS, and therefore researched about this little known disorder. Dr. Grubb, the doctor treating this girl who is quoted in the article, is the doctor I am hoping to see in the near future.
http://www.mlive.com/health/index.ssf/2010/12/rare_disease_makes_caledonia_g.html
It is also pretty crazy for me to read a lot of the similarities I also share with this girl in regards to symptoms, our journeys to a diagnosis, the GI problems, and our joint hypermobility (Ehlers Danlos).
You are welcome Honey...keep working through it all, it will all end well!
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Uncle Steve
Are POTS and EDS often connected?
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